Utah Breast Cancer Support Group

Non-denominational breast cancer support group in Utah for young women in their 20's, 30's and 40's. Friends by Chance. Sisters by Choice.


Young Survivor Sisters is a free, non-denominational breast cancer support group for women living in Utah who are in their 20's, 30's and 40's. We've been supporting each other like sisters since 2003 and welcome your participation. Together We Survive! To join the conversation, please join our Facebook Page

Saturday, December 4, 2010

Christi Anderson Rack Pack Foundation



Hi, my name is Sarah and my family and I just started a non-profit foundation in Utah called The Christi Anderson Rack Pack Foundation. We provide personal support to women going through breast cancer treatment. You can check out our website at http://www.rackpackfoundation.com/.


We currently have been making "treatment bags" which are cute tote bags filled with goodies for women that are going through chemotherapy/radiation. You can see our bags on the Shop/Donate bag of our website.
I lost my 32-year-old sister last February to triple negative breast cancer and we started this foundation in her honor and to help other young women going through treatment and help lift their spirits and provide support in any way we can.

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Camp Kesem - Make the Magic

Camp Kesem is a week long Summer camp for kids age 6-16. This is a camp for kids whose parents have, or have had, or died from cancer. This camp has been wonderful for my kids. It is free to the children and their families. It is entirely run by donations. Make the Magic is one of their biggest fundraisers. It will be held December 11 (Sat) at 6pm in the Skyroom of the Wilkinson Center (at BYU). This is a silent auction dinner and there will be a short presentation about Camp Kesem. The dinner is free (I think). If you'd like to attend please RSVP via e-mail (BYU@campkesem.org) by Wednesday December 8. They should start accepting applications for the 2011 camp sometime in January. Make sure that you RSVP ASAP if you want to go to the dinner. http://www.campkesem.org/site/c.jvI0ImN0JuE/b.2536437/k.79B1/Camp_Kesem_BYU.htm


 







Top Breast Cancer Blog


http://www.onlinenursingschools.com/features/breast-cancer/

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Tuesday, November 23, 2010

Raw Foods


We had so much fun at our November Guest Speaker last week. Joline Wondergem was so knowledgeable and motivating. She gave us some delicious things to try. My favorite was the Green Lemonade and the Chia Pudding. I have included the recipes below. I know that a lot of you wanted to come but for whatever reason were not able to. Joline also teaches Raw Food Cooking Classes at the Viking Cooking School in Salt Lake City. A list of the next three classes are listed below. Thank you Joline for such a fascinating class.

Wednesday, November 10, 2010

November Guest Speaker


December is a busy month for all of us so we are not going to have a guest speaker. Remember to keep February 26th open for our annual Celebration of Life Dinner sponsored by Dr. Marga Massey. More information will be available later.

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Friday, October 15, 2010

October Guest Speaker

Sorry for the last minute notice about this months guest speaker. We had planned on talking about Raw Food Diets this month but our speaker had her baby early and will not be available until next year. Thank you to Melissa Taylor who has stepped up at the last minute to fill in. Melissa and her friend Lana will be talking with us about how we can use essential oils to help us regain our health after we have finished treatment. I hope to see you all there.

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Sunday, October 3, 2010

Koman Survivor Lunch

Last week several of our sisters attended the annual Susan G. Koman Survivor Lunch. It was a lot of fun. A few of us that arrived early were able to sit together and even have this fun picture together. After everything was over we ended up finding a few more of our sisters that were scattered around the room. Next year we need to plan ahead so that we are able to all sit together. I think we could fill up several tables by each other.

The food was great and the speakers were uplifting. Brook Walker from Studio 5 even mentioned our group. She met some of our girls about 3 years ago (before my time). Her entire speech was about how we are all sisters fighting this disease together. The rest of the speakers tied their presentations into the whole sisterhood thing. In many ways I feel even closer to the women in our group than I do to my own 3 sisters. There are so many things that I can share (or show in some cases cases) with you and things that you all understand that my biological sisters will hopefully never understand. This is one experience that I never want to share with them. Thank you all for being my sisters. I know that my life would be very different without you.
If anyone did not get a copy of the group picture I have 4 additional copies. I also have the individual shots for Mary Mower, Melissa Taylor, Kathy Hart, and Kristen (in green shirt she hasn't joined the group yet.) Let me know if you want your pictures.

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Monday, September 20, 2010

Lymphedema Guest Speaker

Our guest speaker last week was great. I learned a lot that I didn't know about lymphedema. Here is the information that she gave us. You can click on the pictures to enlarge and print.




























Sunday, September 19, 2010

Ogden Regional Hospital Annual Family Picnic


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Thursday, September 2, 2010

September Guest Speaker


Candace

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Tuesday, August 10, 2010

National Anthem

As most of you know our group was invited to sing the National Anthem for Tough Enough To Wear Pink night at the Days of '47 Rodeo last month. My husband recorded it for us. The video is very low quality and you can hear the audience singing along but it is still fun to watch and a great honor to have been able to participate. You can watch it at http://www.youtube.com/watch?v=0oP0NNX7YFQ

Friday, May 21, 2010

Cancer Survivor's Day 2010

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Sunday, May 16, 2010

South Area Social - Night of Pampering




Jeni Andersen in our group has been so kind as to reserve a night at the Elase Academy for you to get some pampering that you deserve! The night is Wed May 26th from 7 to 9 PM. The girls there are able to do 7 pedicures, 5 manicures, and 4 facials each hour so please RSVP as soon as possible to me at whitneypoulsen@hotmail.com with your name, your first and second treatment preference (pedicure, manicure, or facial) as well as the time you prefer (either 7 or 8 PM). The cost will be $5 per treatment. We will schedule on a first come first serve basis and will try to accomodate everyone's preference. I will email you to confirm the treatment and time. We should be able to schedule up to 32 treatments total. If we get a bigger response than that and can't accomodate everyone we will definitely try to do this again in the next few months. Should be a great time! Look forward to hearing from you! Please RSVP if possible in the next 2-3 days so we can let the Academy know ASAP. See below location:

Elase Academy
10714 South River Front Parkway
South Jordan UT 84095
801-302-1650
http://www.elaseacademy.com/



All My Best!



Whitney

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Monday, May 10, 2010

May North Area Social


Sorry I forgot to post the details for the May North Area Social earlier. Hopefully everyone got the email I sent out last month. Everyone is welcome regardless of where you live. For May we are planning on meeting at my house, 3013 west 4450 south, Roy. This is NOT the house with the pool that some of you came to last year. We are having a potluck potato bar. I will provide the potatoes & DeAnn is bringing chili so let one of us know what you would like to bring. The main reason we are having it at my house is so we can make breast cancer watch bands. Some of you have seen mine and have said you would like to make one.

If you want to make one of these or one of the other ones I sell, I will teach you how that night. If you can't come I can make them for you and mail it to you. The bands will be $10 or $15 if you want me to mail it to you. If you already have a watch face you can bring it or I will have some my friend sells for $10 each.  If you would prefer to make a different design you can see other options at my blog at www.candyseyecandy.blogspot.com.  All bands will be $10 with is what it costs for the supplies.  I hope to see you on Thursday.

May's Guest Speaker

Here is the information about May's Guest Speaker.  We hope to see you there.

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Monday, April 12, 2010

Address of Davis Hospital

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Thursday, March 18, 2010

April's Guest Speaker


Candace

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Saturday, March 6, 2010

Our First Guest Speaker

I am please to announce that our first guest speaker is scheduled for Wednesday, March 17th at 6:00 p.m. at Davis Hospital in Layton. Gina Ward is the nutritionist that will be speaking to us. She will talk for about 40-45 minutes. We can ask questions during her presentation as well as after. I hope to see you there. The next guest speaker will be on April 21st. The topic will be announced later.

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Monday, March 1, 2010

"Character cannot be developed in ease and quiet. Only through experience of trial and suffering can a soul be strengthened, ambition inspired, and success achieved."

Helen Keller

Wednesday, February 24, 2010

Odd Vegetable Kills Breast Cancer Cells

I just read this article and thought some of you might find it interesting also. I found it at http://www.aolhealth.com/condition-center/breast-cancer/bitter-melon?icid=mainnetscapedl5link3http%3A%2F%2Fwww.aolhealth.com%2Fcondition-center%2Fbreast-cancer%2Fbitter-melon.


Odd Vegetable Kills Breast Cancer Cells

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Thursday, February 18, 2010

Raft for the Cure!!



http://www.raftforthecure.com/

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Sunday, February 14, 2010

Breast Cancer Fears Grow Around Household Cleaners - DailyFinance

This is a VERY INTERESTING article. Everyone should read it.

Breast Cancer Fears Grow Around Household Cleaners - DailyFinance

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Wednesday, February 10, 2010

Nutrition and Healthy Foods During Cancer Treatment



Candace Tatton

Nutrition and Healthy Foods During Cancer Treatment
Now, more than ever, you need good nutrition.
By R. Morgan GriffinWebMD Feature
Reviewed by Louise Chang, MD
When you're getting treatment for cancer, your body is under assault -- both from the cancer and the treatment itself. So it's more important than ever to make sure that you're getting the nutrition, vitamins, and minerals you need to stay strong.
But sometimes during cancer treatment, eating anything is tough. While chemotherapy is notorious for causing nausea, other cancer treatments -- from surgery to radiation -- can also affect how you eat. Just the psychological stress alone is enough to interfere with a person's appetite.
What's more, the whole notion of "good nutrition" may be turned on its head when you're in cancer treatment. "Eating healthy can mean something quite different during cancer treatment than it does before or after," says Rachel Zinaman, MPA, RD, of Memorial Sloan-Kettering's Evelyn Lauder Breast Center.
So what is good cancer nutrition? And how can you eat well when eating is the last thing you feel like doing? Here are some tips from the experts.
Cancer Nutrition: Maintaining Strength and Energy
When it comes to fighting cancer fatigue and boosting strength with good cancer nutrition, you have to pay attention to protein. "The radiation, the surgery, the chemo, and the cancer itself can all increase the body's need for protein," says Christine Gerbstadt, MD, a spokeswoman for the American Dietetic Association. Protein makes you heal faster. How can you get enough protein?
"Meats, poultry and fish are great sources of protein," says Sheri Knecht, RD, a dietitian at the South-Atlantic Division of the American Cancer Society. "But some people have trouble tolerating them during cancer treatment." So she also recommends easy-to-digest foods such as:
· Eggs
· Dairy products such as milk, cheese, cottage cheese, and yogurt
· Beans, soy, and nuts -- including peanut butter or almond butter
As with any nutrient, dietitians recommend getting protein from natural food sources. But if that isn't working for you, try adding protein powders -- like whey or soy -- or powdered milk to your diet. If you have trouble chewing or swallowing because of your treatment, try mixing them in with soft foods such as mashed potatoes or fruit smoothies.
Don't wait until after you're already in treatment to beef up on protein for cancer nutrition. "We want people to be as healthy as possible before going into surgery, because their bodies will be under a lot of stress," Zinaman tells WebMD. "It's important to go into treatment with adequate stores of protein."
Cancer Nutrition: Avoiding Weight Loss
Unwanted weight loss can be a serious problem for some people in cancer treatment. As your body fights the cancer, and undergoes the stress of treatment, your metabolism may kick into high gear. But while your body might need more food, you're feeling too sick to eat it. Losing too much weight can affect your treatment or even force your doctor to stop it altogether.
Cancer Nutrition: Avoiding Weight Loss continued...
What should you do if you're at risk for weight loss?
· Dietitians suggest you eat foods that are calorically dense -- packing a lot of calories per ounce. Again, protein is ideal.
· If treatment is making your food taste bland, try spicing it up with curry, oregano, or cinnamon, says Zinaman.
· And -- odd as it may sound -- you may need more fat in your diet. Remember that the risks of weight loss are serious. Many dietitians say you can indulge in high-fat pizza or ice cream if that's the only way you can get enough calories.
However, not all cancers and cancer treatments lead to weight loss. For instance, breast cancer treatment often results in weight gain, says Zinaman. So don't assume that good cancer nutrition always means lots of high-calorie and high-fat foods. Ask your doctor or dietitian whether weight loss is something you actually need to worry about.
Cancer Nutrition: Fighting Nausea
Thanks to new drugs, debilitating nausea during chemotherapy isn't inevitable like it once was. But 70% to 80% of people on chemotherapy still have at least some nausea or vomiting. What foods will help?
Ginger is one old remedy for nausea. Experts say ginger does help some people, although by no means all. Other standards, like dry toast, may work too. "Many of the starchy foods often work with nausea," like crackers, pretzels, dry cereals, potatoes, and white rice, says Knecht.
On the whole, it's hard to make blanket suggestions about foods that fight nausea. The specifics vary from person to person.
"I had one person who said that fast-food fried chicken was the only thing that calmed his stomach," says Knecht. "Obviously, that's the exact opposite of what we usually recommend, but I told him if it worked, he should go with it."
Other techniques may help. Since it's hard to sit down to a full meal, eat frequent small snacks instead. Knowing you have to eat can be stressful when you're sick, says Zinaman, and that stress in turn makes it harder to eat. So she recommends breaking your usual dining habits -- try eating by candlelight, or with music on, or outside. Anything that avoids the normal associations may help.
Cancer Nutrition: Staying Hydrated
Drinking enough fluid is a key part of cancer nutrition. According to the American Cancer Society, many symptoms associated with cancer and its treatment -- fatigue, light-headedness, and nausea -- can actually result from dehydration.
People getting chemotherapy need to be especially careful about drinking enough -- usually eight to ten glasses a day. Some chemotherapy drugs can be tough on the kidneys, and lots of liquid can help protect your kidneys. If you're having diarrhea or vomiting, you're probably losing a lot of fluid that you need to replace.
Cancer Nutrition: Staying Hydrated continued...
"Just about any kind of liquid that the person can tolerate is OK," says Knecht, as long as the doctor doesn't say otherwise. Water, juices, and sports drinks are all fine. However, if your cancer treatment puts you at risk of gaining weight -- or for that matter, losing it -- pay attention to how many calories are in your drinks.
Are caffeinated drinks okay? Generally yes, although your doctor may not want you to count them among your eight to ten glasses a day. Ask your doctor if you should completely cut out alcohol. The answer depends on the type of cancer and the treatment.
Cancer Nutrition: What Foods Should I Avoid?
The short answer is simple: during treatment, avoid the foods that you can't tolerate. Just about anything else is OK, unless your doctor tells you something different.
Should you aim for a typical well-balanced diet, high in fruits and vegetables and low in sugars and unhealthy fats? Of course. That's always the ideal goal.
But if some of those foods aren't sitting well with you, don't worry about cutting them out right now. People with mouth sores may find that some fruits are too painful to eat. People who have nausea and diarrhea may find that they just can't tolerate the high-fiber breads and cereals. That's OK. Remember that treatment won't last forever. Once it's over, you can go back to healthier eating habits. The goal right now is to get through treatment however you can.
Of course, always follow your doctor's advice about cancer nutrition. Depending on your situation and any other health conditions, he or she might have specific recommendations.
Cancer Nutrition: Supplements and Risky Diets
While we hear a lot about using food as medicine these days, experts say that it's not a great idea when you're in cancer treatment. Don't adopt an extreme diet or start taking mega-doses of specific foods, supplements, or vitamins. Doing so could have real risks.
For instance, experts worry that eating excessive amounts of soy products -- such as tofu -- could theoretically encourage the growth of breast cancer. Even antioxidants -- thought by many to prevent cancer -- could have dangers during treatment, Zinaman says.
"Antioxidants help protect cells," Zinaman says. "So if someone were taking lots of antioxidants, they could theoretically be protecting the cancer cells we're trying to kill with treatment."
Never start taking any supplements -- or eating large quantities of specific foods -- without checking with your doctor first.
Getting Help With Cancer Nutrition
Dietitians are unanimous about one thing: there's no single cancer diet. The best approach to cancer nutrition depends on the type of cancer you have, the type of treatment you're getting, and perhaps most of all -- what you want. The diet that gets one person through cancer treatment won't work for someone else.
So don't fret over checklists of "good" and "bad" foods for cancer nutrition. Instead, talk to your doctor or schedule an appointment with a dietitian.
"The advantage of working with a dietitian is that you'll get more than vague, general statements about what to eat," says Zinaman. "A dietitian can come up with a targeted plan for you as an individual."




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Saturday, February 6, 2010

Celebration of Life Dinner...as told by Erin Gadd



I blogged this recently on my family blog and decided I would share it with all of you.  Since, you are after all, my sisters!!

A special thanks to Ginger Johnson and Candace Tatton for the AMAZING Celebration of Life Dinner.  You guys are seriously amazing.  Love you both!  Thanks a million!

Here's my blog entry...

So,  I'm part of the best group ever.  It my breast cancer support group entitled, The Young Survivor Sisters .  It's a group another girl and I started after we were diagnosed with breast cancer 7 years ago.  It's a support group for women diagnosed with breast cancer under age 45.  One in every 8 women will get breast cancer...usually not in their twenties though.  So we're a rare breed. 

When a nurse coordinator put me in touch with another young woman battling breast cancer I felt an immediate connection.  Ginny Nelson ... (Ginny and her hubby)




and I were instant pals the second we started talking on the phone seven years ago.  Then we decided to meet for lunch along with another young survivor, Cheryl Pulsipher. (no relation, but the irony....)  After having lunch together and feeling so relieved to talk to someone about our experiences, challenges and fears, we knew we had something good going.  While I have AWESOME friends and family support, there is something extra special about connecting with another "sister" who has been through the same crap I have.

Ginny and I started meeting other young women at various places and realized what a benefit it was to get together and share stories.  Even if it was just to laugh and sometimes cry, it feels great to have someone who understands.  It proved to be an AWESOME resource for surgeons, doctors, reconstruction options and where to get the best wigs.  Ginny and I kept meeting more and more young women and decided we need to form a group and name ourselves.  We decided that ever since we've met each other, it was like having a sister...hence...Young Survivor Sisters.

Along the way, we met an AMAZING survivor named Ginger.   (Ginger and her hubby)




Ginger saw that keeping the group going was becoming somewhat burdensome on Ginny and I and she stepped in to help out.  Ginger has done AMAZING things for our group.  In the one year since she has been president, our group has gone from around 40 members to almost 80.  She designed these super cute cards to put in doctors offices to advertise our group.



She has worked tirelessly to get the word out.  We knew there were lots of young women out there who needed our group, but just didn't know how to find us.  Ginger has done so much to improve that.  Ginger started a yearly donated dinner entitled, Celebration of Life.  We have a nice dinner, (donated by a generous plastic surgeon Dr. Marge Massey) and enjoy a nice program and each other's company.




This year was AWESOME.  It was overwhelming to see so many faces that I'd never seen before.  Ginny and I were both so taken back that what was a small lunch in a McDonald's 7 years ago, has turned into this!!!  (click image to see larger...oh, if anyone wants a copy of their picture, just email me and I'll send it right over!)



I'm so grateful for the experiences, life lessons, and humility I learned from having cancer.  The experience was forever life-changing.  I feel like the person I am today, is due in large part to the lessons I learned while battling the disease.  Everything from self worth to physical illness and lots of lessons in between.  I grew an unbelievable amount spiritually and my testimony of the gospel has deepened imeasurably.   I know that meeting Ginny was not a lucky happen-stance.  It was a blessing from above.  These amazing young women have changed my life.  I have learned from them, laughed with them, and will forever be their best friends.

If you know a young woman who could benefit from our group, please refer them to our website.  It can make all the difference.
The Young Survivor Sisters

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Wednesday, January 13, 2010

Celebration of Life Dinner/Social


Celebration of Life Dinner/Social will be Jan. 22nd.
Please contact youngsurvivorsisters@gmail.com for details

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Thursday, January 7, 2010

Camp Kesem Summer Camp

We received this information about Camp Kesem and wanted to pass it on. Please contact them directly for more information.

Dear Cancer Support Groups,
 
         I am writing this email on behalf of the BYU branch of Camp Kesem.  Camp Kesem is a nonprofit summer camp that gives children affected by a parent's cancer the opportunity to just be kids.  Campers at Camp Kesem engage in camp activities like sports, arts and crafts, and drama to give them a fun-filled week.  Campers also participate in "Cabin Chats" with fellow campers and counselors, giving children the chance to share their experiences with each other.  To answer a few questions you might have, here is some information from the website:

Q:  What is Camp Kesem?

A:  Camp Kesem is a free, week-long summer camp for children of cancer patients. Campers must be between 6-13 years old to participate. Each camper has a parent who currently has or has had cancer. At Camp Kesem BYU, our campers come from all over Utah, Colorado, and Idaho.

Q:  How much does camp cost?

A:  Camp Kesem is free to all campers. Along with the emotional and physical burdens that cancer can place on families, there is also a major financial strain. Thanks to the generous donations from community members, business, and other organizations camp is free to all campers.

Q:  When and where does camp take place?

A:  Camp will be held August 16-21, 2010 at Camp Kostopulos, which is in Immigration Canyon, by Hogal Zoo in Salt Lake City, UT. To know more about the camp site you can visit their web site at: http://www.campk.org/

            We are currently searching for campers!   We would love to send you information (i.e. brochures) that you can pass along to anyone you know who would benefit.  Email me back if you are interested.  Thanks so much!

Nathan McMurray

Camper Support

BYU Camp Kesem

P.S.  For more information, go to our website, http://www.campkesem.org/site/c.jvI0ImN0JuE/b.2536437/k.79B1/Camp_Kesem_BYU.htm.   To view a short promotional video made this past summer by the BYU Camp Kesem, go to http://www.youtube.com/watch?v=gJ3s1VNwSLg.






Books Available

Ginny and I (Erin) have collected a bunch of really great breast cancer related books and would love to share them with anyone interested in reading...Just leave a comment here on the blog and we'll arrange getting you the book!

Here's the list:

Finding the “CAN” in Cancer
By Nancy Emerson, Pam Leight, Susan Boonan and Terri Schinazi

Fighting for our future- How Young Women Find Strength, Hope, and Courage While Taking Control of Breast Cancer-
Forward by Ann Curry of the Today Show
By Beth Murphy

Voices of Breast Cancer- The Haling Companion: Stories for Courage, Comfort & Strength
Edited by the Healing Project

Just a Lump in the Road- Reflections of Young Breast Cancer Survivors
By Debbie Leifert, Gina Castronova, Dr. Tamara Brennan, Jackie Ehrilich, Cindy Goldberg, & Donna Palmisciano

Breast Cancer Survivor Fitness Plan
By Carolyn M. Kaelin, M.D., M.P.H.

Facing the Mirror With Cancer- A Guide to using Make-up to Make a Difference
By Lori Ovitz and Joanne Kabak

Breast Cancer Husband-- How to Help your Wife and (Yourself) Through Diagnosis, Treatment, & Beyond
By Marc Silver

First You Cry- The Classic Inspiring Story of One Woman’s Triumph Over Breast Cancer
By Betty Rollin

The Middle Place- A Memoir of Kelly’s battle with breast cancer
By Kelly Corrigan

Crazy, Sexy, Cancer Tips-
By Kris Carr--Forward by Sheryl Crow

Tools & Tips From the Trenches- Heartfelt Advice for Survivors Families & Friends
By Mary Olsen Kelly

Chicken Soup for the Breast Cancer Survivor’s Soul
By Jack Canfield, Mark Victor Hansen, & Mary Olsen Kelly

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